Survey for the Parkinson's Community
Dr. Galit Kleiner-Fisman, the Director of the Movement Disorder Clinic at Baycrest Hospital, will be speaking at PSCNO’s October regional conference addressing practical strategies to maximize symptom control and improve quality of life. To this end, she and her team have developed a Live Well with Parkinson’s website and she is now endeavoring to improve this website to make it a resource that is truly reflective of the needs of the PD community. There is a component of the website that deals with medication and diet and so, in collaboration with George Brown College, Dr. Kleiner-Fisman has created a questionnaire to determine the current knowledge of people living with Parkinson's regarding protein and l-dopa so they can determine next steps and needs that have not been addressed. We would appreciate it if you could take 5 minutes to answer the survey: bit.ly/1eKfYYE
Expert Webinar Series
Parkinson Society Canada will deliver its first Expert Webinar Series. These sessions are specifically designed for professionals who treat Parkinson’s and movement disorder patients.
Parkinson's Early & Young Onset Support Groups in the Region
Please click here to view details.
Young Onset Parkinson disease (YOPD) is a Parkinson diagnosis before the age of 40 and Early Onset Parkinson disease (EOPD) is a diagnosis between the ages of 41 and 60.
Join us for a webinar presentation by Dr. Anurag Tandon, Associate Professor, Department of Medicine at University of Toronto.
When: March 6, 2014
Time: 2 pm
Topic: The ability of alpha-synuclein to spread from neuron to neuron
For more information and to confirm your attendance, please click here.
Walking 4,361 Kilometres to World Parkinson Congress
Marg and Don Turner are walking to Portland (virtually). That is the location for the next World Parkinson Congress in 2016.
The walk is a means to build awareness and a fundraiser for Parkinson's.
To learn more and donate, please click here.
To learn more about hosting independent community events please contact email@example.com.
Public Talk: Taking Charge of Your Brain Health
Please join us for the Ontario Brain Institute (OBI) public talk: Taking Charge of your Brain Health. Opening remarks by Dr. Donald Stuss, President and Scientific Director of the OBI, followed by keynote speaker Dr. Tiffany Chow, Behavioural Neurologist and Senior Clinician-Scientist at the Baycrest Rotman Research Institute. The title of Dr. Chow’s talk is 'Bringing Compassion into Lives with Neurological Disorders'.
The event will be held at 7:00 p.m. on Friday, February 7th 2014 in the Auditorium of MaRS Discovery District (101 College Street, Toronto, at Queen’s Park Subway Station, wheelchair accessible). For more information and to register, please click here.
Toronto Western Hospital is conducting a clinical study investigating visual hallucinations in PD patients. For more information, please click here.
Class Action Proceeding in Regards to Requip
action proceeding in regards to Requip (generic name
ropinirole hydrochloride) has been certified in Ontario. All persons resident
in Canada (except the province of Quebec) who were prescribed this treatment
and who have Impulse Control Disorders may qualify as a Class Member. Individuals
with Parkinson’s who wish to participate in the process must fill out a
questionnaire which is available at www.thomsonrogers.com
Buddy Program - Starting January 2014
Based on the concept of creating a Parkinson Society community for dialogue, discussion and companionship across Central & Northern Ontario, the Buddy Program is an opportunity to match people living with Parkinson’s and/or carepartners with others based on similar interests and experiences.
People living with Parkinson’s who are interested in being matched to a buddy, please send an email to: firstname.lastname@example.org
Carepartners who are interested in being matched to a buddy, please send an email to: email@example.com
For more information, please click here.
Survey on Clinical Research
A student by the name of Nahya Awada is undergoing her Master’s Degree in clinical Research at the University of Liverpool.
She is preparing a thesis proposal for a topic titled “Knowledge, attitudes, and perceptions of individuals with familial history of genetic disease regarding implications of personalized medicine to personal health in Canada”.
She is inviting interested individuals to participate in a survey. This is a voluntary and anonymous survey that will take approximately 7 to 12 minutes.
The International Online Research Ethics Committee at the University of Liverpool has approved this study. To participate in the survey questionnaire, please click here.
Call To Action - Support Bill 127 and Help Put an End to Genetic Discrimination
On November 4, 2013, Mike Colle, MPP for the riding of Eglinton-Lawrence, re-introduced Private Member’s Bill 127, the Human Rights Code Amendment Act (Genetic Characteristics), 2013, that if passed, would amend Ontario’s Human Rights Code to include “genetic characteristics” as prohibited grounds for discrimination.
Currently, Canadians are experiencing discrimination from employment, insurance and disability policies based on their genetic information. There is a genetic form of Parkinson’s disease that impacts a small percentage of the population; and people with a family history of Parkinson’s are being denied coverage. This is genetic discrimination and it is unfair and unjust.
Genetics is also a vital area of Parkinson’s research supporting the hope for a cure and better treatments. However, people are reluctant to participate in genetic research because they fear discrimination.
Join Parkinson Society Central & Northern Ontario and the Canadian Coalition for Genetic Fairness in establishing genetic fairness legislation in Ontario. Write to your Member of Provincial Parliament asking them to support Bill 127 and put an end to genetic discrimination.
To aid you in this effort, Parkinson Society Ontario has provided a sample letter on this issue that can be personalized and/or tailored to your own experience. Please let us know via email at firstname.lastname@example.org if you decide to contact your MPP. We greatly appreciate your efforts in this important matter.
For more information about genetic fairness, please click here.
Call to Action - Ontario Movement Disorders Strategy
As many in the Ontario Parkinson's Community may know, the Minister of Health and Long-Term Care (MOHLTC) has decided to cut funding to the Centre for Movement Disorders (CFMD) located in Markham.
As a result, this clinic closed August 31, 2013, impacting 2,500 Ontarians and their families who lost access to essential services provided at the CFMD.
We are asking the Parkinson's Community for help.
New Website Offers Recipe for Successfully Managing Parkinson's
Patients with Parkinson's will soon have a new place to turn for practical resources that could help improve their quality of life. A physician specializing in movement disorders at Baycrest Health Sciences teamed up with the Assistive Technology Clinic (ATC) and students from George Brown College to create recipes and develop a website offering people with Parkinson's practical tools and information to manage their symptoms.
The website, livewellwithparkinsons.com, provides important information on two key aspects of symptom management: diet and medication.
Canada's National Population Health Study of Neurological Conditions Update
Neurological Health Charities Canada (NHCC) is a collective of 25 national Canadian charities that represent people with chronic, often progressive, neurological and/or neuromuscular diseases, disorders, conditions and injuries.
A significant NHCC project is the National Population Health Study of Neurological conditions.
Click for an update »
Personal Event Manager
CNO has access to a great new fundraising tool!
If you're planning on running a 3rd party fundraiser, want to solicit support for an event, or even if you're having a birthday celebration the online PEM tool is a great way to raise funds.
Online giving allows you to ask for donations in an easy way, donors to give through a single form, and receipts to be issued automatically. This cuts down time, effort and costs on all ends.
View a current example of an event or contact email@example.com to get some help on setting up your own event.
Get it on time: Hospital Preparation Kits
Parkinson Society CNO is pleased to offer you a Get it on time Hospital preparation kit.
The purpose: to help make your hospital stay a smooth one.
Whether your visit is planned, or unplanned, having a GIOT kit packed with useful information – for yourselves and for your healthcare team – emergency doses/sample pills and other items you’ll need like pajamas; toothpaste; and similar items will be a big help.
Share this information. When you are visiting a hospital, make sure that staff know that people living with Parkinson’s need their meds on time – every time!
Testing a New Non-Motor Symptom Resource
Researchers are hopeful that a new resource can help people with some of the non-motor symptoms of Parkinson's and they are looking for people to help them test this theory.
Click to view the new Guide to the Non-motor Symptoms of Parkinson's.
Get it on time Pill Timers Available
For people with Parkinson's medication timing is essential, and, we've made a new resource available to help you track your meds.
Visit our Get it on time resource section for more information»