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Education Events

We have a number of education events coming up. For details, please click here


Parkinson's Awareness Month

On April 1, 2014 statements about Parkinson's were made at Queen's Park launching Parkinson's Awareness Month. To read the transcript of the proceedings, please click here.


Parkinson SuperWalk

Parkinson SuperWalk is launching a brand new web site on May 8, 2014 and we’re excited to be able to serve you better! This year’s walks take place on September 6 and 7 in more than 30 locations across our region. Want to start fundraising early? Download a print copy of our pledge form here. In the meantime, if you have any questions about Parkinson SuperWalk do not hesitate to contact us at 800-565-3000 or kim.murdoch@parkinson.ca. See you in September!


Upcoming Education Events

May 7, 2014: Dr. Soania Mathur, Living Positively after a Diagnosis of Parkinson’s disease

Location: Royal Botanical Gardens, 680 Plains Road West, Burlington

May 20, 2014: Sarah Robichaud, Dancing and Parkinson's

Location: Roberta Place, Barrie

May 28, 2014: Dr. Naomi Visanji, BioMarkers of PD

Location: Golden Plough Lodge, Cobourg

For details, please click here.


Parkinson's Webinar

Topic: Adjusting to Life with Young-Onset Parkinson’s Disease

Date: May 20, 2014

Time: 12 pm

For details, please click here or contact Alineh Haidery at alineh.haidery@parkinson.ca.


1st Annual Regional Conference: Save the date: October 24-25, 2014

October 24th: Dinner with keynote speaker Dr. Joseph DeSouza, Mechanisms behind Dance Therapy

 

October 25th: Full day, with lunch

Dr. Ron Postuma, Non Motor Symptoms of Parkinson's

Dr. Galit Kleiner-Fisman, Living Well with Parkinson's

Location: Westin, Bristol Place, Toronto

More information, including registration and fee details, will be made available soon.



Share your personal story - Genetic Fairness

As an active member of the Canadian Coalition for Genetic Fairness, Parkinson Society Canada is committed to fighting genetic discrimination. A small percentage of the population has a genetic form of Parkinson’s disease, and people with a family history of Parkinson’s are being unfairly denied insurance.We are working to ensure protections are in place to prevent employers and insurance companies from discriminating against Canadians based on their genetic characteristics.Parkinson Society Canada is asking our community to share their personal story of how they or someone they know have been affected by genetic discrimination. These stories will be shared anonymously with key policy makers to highlight the impact of genetic testing and communicate concerns shared by Canadians coast to coast.


If you would like to share your story and help ensure genetic fairness protection in Canada, please contact Alineh Haidery at alineh.haidery@parkinson.ca.


Expert Webinar Series

Parkinson Society Canada will deliver its first Expert Webinar Series. These sessions are specifically designed for professionals who treat Parkinson’s and movement disorder patients.

These interactive sessions will be led by Canada’s leading Parkinson’s experts. For the list of upcoming webinars, please click here or visit www.parkinsonclinicalguidelines.ca/education.

Parkinson's Early & Young Onset Support Groups in the Region

Please click here to view details.

Young Onset Parkinson disease (YOPD) is a Parkinson diagnosis before the age of 40 and Early Onset Parkinson disease (EOPD) is a diagnosis between the ages of 41 and 60. 



Walking 4,361 Kilometres to World Parkinson Congress

Marg and Don Turner are walking to Portland (virtually). That is the location for the next World Parkinson Congress in 2016.

The walk is a means to build awareness and a fundraiser for Parkinson's.

To learn more and donate, please click here.

To learn more about hosting independent community events please contact jon.collins@parkinson.ca.


Clinical Study

Toronto Western Hospital is conducting a clinical study investigating visual hallucinations in PD patients. For more information, please click here


Class Action Proceeding in Regards to Requip 

Class action proceeding in regards to Requip (generic name ropinirole hydrochloride) has been certified in Ontario. All persons resident in Canada (except the province of Quebec) who were prescribed this treatment and who have Impulse Control Disorders may qualify as a Class Member. Individuals with Parkinson’s who wish to participate in the process must fill out a questionnaire which is available at www.thomsonrogers.com


Buddy Program 

Based on the concept of creating a Parkinson Society community for dialogue, discussion and companionship across Central & Northern Ontario, the Buddy Program is an opportunity to match people living with Parkinson’s and/or carepartners with others based on similar interests and experiences.

People living with Parkinson’s who are interested in being matched to a buddy, please send an email to: bill.sloan@parkinson.ca

Carepartners who are interested in being matched to a buddy, please send an email to: barry.shorrocks@parkinson.ca

For more information, please click here.


Survey on Clinical Research

A student by the name of Nahya Awada is undergoing her Master’s Degree in clinical Research at the University of Liverpool. 

She is preparing a thesis proposal for a topic titled “Knowledge, attitudes, and perceptions of individuals with familial history of genetic disease regarding implications of personalized medicine to personal health in Canada”.

She is inviting interested individuals to participate in a survey. This is a voluntary and anonymous survey that will take approximately 7 to 12 minutes.

The International Online Research Ethics Committee at the University of Liverpool has approved this study. To participate in the survey questionnaire, please click here.


Call To Action - Support Bill 127 and Help Put an End to Genetic Discrimination

On November 4, 2013, Mike Colle, MPP for the riding of Eglinton-Lawrence, re-introduced Private Member’s Bill 127, the Human Rights Code Amendment Act (Genetic Characteristics), 2013, that if passed, would amend Ontario’s Human Rights Code to include “genetic characteristics” as prohibited grounds for discrimination.

Currently, Canadians are experiencing discrimination from employment, insurance and disability policies based on their genetic information.  There is a genetic form of Parkinson’s disease that impacts a small percentage of the population; and people with a family history of Parkinson’s are being denied coverage. This is genetic discrimination and it is unfair and unjust. 

Genetics is also a vital area of Parkinson’s research supporting the hope for a cure and better treatments.  However, people are reluctant to participate in genetic research because they fear discrimination. 

Join Parkinson Society Central & Northern Ontario and the Canadian Coalition for Genetic Fairness in establishing genetic fairness legislation in Ontario. Write to your Member of Provincial Parliament asking them to support Bill 127 and put an end to genetic discrimination.

To aid you in this effort, Parkinson Society Ontario has provided a sample letter on this issue that can be personalized and/or tailored to your own experience. Please let us know via email at alineh.haidery@parkinson.ca if you decide to contact your MPP. We greatly appreciate your efforts in this important matter.

For more information about genetic fairness, please click here.



Call to Action - Ontario Movement Disorders Strategy

As many in the Ontario Parkinson's Community may know, the Minister of Health and Long-Term Care (MOHLTC) has decided to cut funding to the Centre for Movement Disorders (CFMD) located in Markham.

As a result, this clinic closed August 31, 2013, impacting 2,500 Ontarians and their families who lost access to essential services provided at the CFMD.

We are asking the Parkinson's Community for help.


New Website Offers Recipe for Successfully Managing Parkinson's

Patients with Parkinson's will soon have a new place to turn for practical resources that could help improve their quality of life. A physician specializing in movement disorders at Baycrest Health Sciences teamed up with the Assistive Technology Clinic (ATC) and students from George Brown College to create recipes and develop a website offering people with Parkinson's practical tools and information to manage their symptoms.

The website, livewellwithparkinsons.com, provides important information on two key aspects of symptom management: diet and medication.


Canada's National Population Health Study of Neurological Conditions Update

Neurological Health Charities Canada (NHCC) is a collective of 25 national Canadian charities that represent people with chronic, often progressive, neurological and/or neuromuscular diseases, disorders, conditions and injuries.

A significant NHCC project is the National Population Health Study of Neurological conditions.

Click for an update »



Personal Event Manager

CNO has access to a great new fundraising tool!

If you're planning on running a 3rd party fundraiser, want to solicit support for an event, or even if you're having a birthday celebration the online PEM tool is a great way to raise funds.

Online giving allows you to ask for donations in an easy way, donors to give through a single form, and receipts to be issued automatically. This cuts down time, effort and costs on all ends.

View a current example of an event or contact jon.collins@parkinson.ca to get some help on setting up your own event.

Current CNO Events

John Versteeg - Desert R.A.T.S.

Lynette Blum - Yoga for Parkinson's

Team Parkinson

We are fortunate to have a number of events/fundraisers who have raised a significant amount of money. They have become members of Team Parkinson.


Get it on time: Hospital Preparation Kits

Parkinson Society CNO is pleased to offer you a Get it on time Hospital preparation kit.

The purpose: to help make your hospital stay a smooth one.

Whether your visit is planned, or unplanned, having a GIOT kit packed with useful information – for yourselves and for your healthcare team – emergency doses/sample pills and other items you’ll need like pajamas; toothpaste; and similar items will be a big help.

Share this information. When you are visiting a hospital, make sure that staff know that people living with Parkinson’s need their meds on time – every time!

More Information»


Testing a New Non-Motor Symptom Resource

Researchers are hopeful that a new resource can help people with some of the non-motor symptoms of Parkinson's and they are looking for people to help them test this theory.

more information»

Click to view the new Guide to the Non-motor Symptoms of Parkinson's.


Get it on time Pill Timers Available

For people with Parkinson's medication timing is essential, and, we've made a new resource available to help you track your meds.

Visit our Get it on time resource section for more information»


Clinical Trials and Research Studies Seeking Participants
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